It’s time for a new blog already! I have been thinking a lot about which topics to cover. Today I wanted to write something about energy levels and things that give you energy too. The Spoon TheoryMy favourite way to discuss energy levels is with the spoon theory. This theory …
When you don’t have that much energy on a day, you have to get creative when it comes to planning. A planner is great, but it can also make you feel pressured into finishing everything even though you don’t have the energy. So I wanted to write a blog about …
People who have less energy on a regular basis know this feeling: missing out on parties and other social events. How do you deal with this? Also, how do you explain to other people that you might have to leave early or maybe not being able to come at all? …
Maybe a lot of parents with children that have Poretti Boltshauser Syndrome have the question: will my child be able to work and provide for themselves? That is a very good and logical question. Even if your child is young, hearing about all these difficulties they will probably face is …
This blog post is about having something that is so rare that many doctors have never heard of it. Maybe some specialists have never even heard of it. My neurologist at the best neurological centre in the Netherlands commented about me being the first person with this syndrome he had …
Sorry for not writing any blogs anytime sooner, I just couldn’t get myself to do it! But here I am with a new blog. This time it’s about stepping out of your comfort zone. The past few years I have had to learn how to deal with the lesser amount …
In my blogs I have mentioned the mental aspect of having Poretti Boltshauser Syndrome for me. So another one about that. I am an overachiever. I love to achieve things, and to achieve a lot. And I cross my boundaries sometimes doing so. In this blog post I will explain …
In this blog I will tell you something about my fear of fireworks, since the worst time of the year for me personally will be here soon: New Years Eve. While I do think it’s a nice holiday there is something that ruins the fun for me: fireworks. Especially the …
Good morning to you all! Today I will write about starting my own business, how this all happened and why I chose to do so. So, as you might know or experience now, children with Poretti Boltshauser Syndrome develop and learn on their own pace. They don’t really fit in …
When I was little, I was a very picky eater. I still am to some extent. But the older I got, the more I realized what I liked and what not, and why. I would like to tell you about what I figured out! I have always had issues with …
